I often have people say things to me like, "I can't believe how well you handle Reagan's CF," or "Reagan is lucky to have a mom like you." Although it is reassuring to hear that others think I am doing a good job taking care of a child with Cystic Fibrosis, I cannot take all of the credit. I am incredibly blessed to have an extremely supportive family! After the past couple of stinky weeks, I have been in a bit of a bummer mood. Then this morning I opened my email and had an message from my niece Nayeli (and her dad, Nick). It made me start crying when I realized just how great my life is. I have the most amazing daughter who fights Cystic Fibrosis every day, and she isn't fighting alone. Hope you don't mind me posting this email Nick!
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"(This is Nick writing for a moment, just to explain this e-mail from Nayeli. As I was walking her to preschool today, she mentioned that she missed Reagan. I told her that we would see her over the holidays, and mentioned that we were going to do a walk for Reagan in the spring. Being her inquisitive self, she asked me all about the walk for cystic fibrosis and I explained to her that we were going to raise money to help cure Reagan's illness. We changed topics as we entered the school, but as she hung up her backpack and gave me a hug, she said: "Can I help make money for Reagan, too, Daddy?" When I told her that she could raise money just like Daddy, she said: "I'm gonna beat you." So now Nayeli wants to compete with me in fundraising for Reagan, and we've set up a site where she can raise money with her little sister, Karyna. I will include the URL at the end of this e-mail, for those of you wanting to donate money to the cause under their names. Now, here is an e-mail that Nayeli dictated to me this evening for all of you to enjoy!)
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Hi! I'm gonna beat Daddy to make money for Reagan. Reagan and Karyna played by the entertainment center. She has cystic fibrosis and eats enzymes. We're gonna make money as the whole family. Daddy, what's cystic fibrosis? Grandma Miller and Grandpa Miller and Grandma Namie and Grandpa Namie and Cameron and Brittany and Emma are going to visit in November! Austin is my best friend. Please give Reagan money so I can beat Daddy. After bed it will be tomorrow. I love you, Daddy. Bye!
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(I might add that she dictated this to me under the heavy influence of Halloween candy!)
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My family is amazing!